The effects of DBS on the motor symptoms of Parkinson’s Disease
I made this video today as I was curious about what would happen when I turned my neuro-stimulator off. I am flying to Sydney tomorrow for a conference and didn’t want to be blind-sided if the screening device turned my DBS implant off (which has been known to happen). I hadn’t turned it off before, so this was quite the experience. Cheers, AJ
I’d just like to clarify a couple of things about the surgery I underwent, the effects of which I recorded and posted online.
1. This is a treatment, not a cure. Like all treatments people respond differently. Results may vary.
2. DBS is not suitable for all Parkinson’s patients, but a select few whose motor symptoms cannot be controlled by medications. It does not stop the disease, nor does it slow it down, it acts as an adjunct therapy (in my case) to medications. Some people can get off the meds after DBS, I am not one of them.
3. DBS does not help the many varied non motor symptoms of Parkinson’s. In fact, it could make them significantly worse. This is why stringent suitability criteria are applied.
4. If you have PD listen to what your doctors are telling you, they know what they are doing and they’ve seen it before. This is not a miracle cure, it is a proven treatment which happened to work for me quite spectacularly, but that was because a subset of my symptoms were ones most likely to respond to the surgery. It’s not a case of I got lucky though, I was carefully screened for suitability.
Cheers for all your support, it is very humbling!