Halfway there….

I wasn’t going to post an update until everything had been completed but it seems people want to know how it all went judging by the messages I have received.  I am pleased to say it went well, and for 5-6weeks post surgery I had really remarkable results.  I am chomping at the bit to […]


So late last week I got the phone call I had been hoping for.  It was Lorraine, our outstanding Movement Disorders Nurse Specialist at Auckland Hospital.  She was the bearer of awesome news – the DBS Committee had met and after consideration of all my assessments they decided that I was a suitable candidate for […]

We have Parkinson’s

I’m writing this post in the coffee shop in Auckland Hospital while waiting to see my neuropsychiatrist as part of my assessment for DBS and as you do before these appointments I have been reflecting on how I am feeling and what’s been going on in my head. To be honest the bad days out […]

It’s been a while…

So. I am sorry I haven’t been as active as I would have liked in posting to this blog.  From the feedback I have had, I am encouraged to continue with this venture in raising awareness. Part of the reason for my apparent disinterest (which is not the case at all I can assure you) […]

“Where is my mind?…where is my mind?”

The closing scene to the movie Fight Club is made all the more awesome by an inspired choice of music to accompany the visually arresting explosions peppered throughout the city- Where is My Mind by The Pixies.  This has always been one of my all time favourite songs from one of my all time favourite […]

The second post

So we made it back to Auckland late last night. The Parkinson’s Australia National Conference in Brisbane was a huge success.  We met some fantastic people and learned a whole lot. It was great to finally meet people in the same position as me i.e. in our 30’s with young families and who are also […]

The first post

Wow.  It has taken quite a bit of work to get to this point, but I am now finally ready to start this blog.  Like most things, it has taken me a lot longer than I thought to get it all in place.  That’s the thing with Parkinson’s- it just takes so much more energy […]


Parkinson's New Zealand has an amazing Field Officer service which provides education, information and helps people make informed decisions about living with Parkinson’s. I am proud to support their work.

WPC 2013